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ERRAS

ERN SKIN...

Description

ERN SKIN covers the medical field of rare, complex and undiagnosed skin disorders in children and adults. Most of them are exclusively cutaneous/sub-cutaneous and often present a severe prognosis, because of the intensity of the cutaneous/mucosal inv...

General Design

Type
Registry
Cohort type
Clinical cohort
Data collection type
Retrospective, Prospective
Design
Longitudinal
Design description
Medical field of rare, complex and undiagnosed skin disorders in children and adults.
Start/End data collection
2021 (ongoing)

Population

Countries
Austria, Croatia, France, Germany, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg, Malta, Netherlands (the), Czechia, Denmark, Belgium, Finland, Romania, Slovenia, Sweden, Spain
Population age groups
All ages
Inclusion criteria
Hospital patient inclusion criterion
Other inclusion criteria
Rare and complex dermatological diseases

Organisations

Lead organisations
  • Assistance Publique-Hôpitaux de Paris, Hôpital Necker-Enfants Malades 
    France

    Data provider, Data access provider

Additional organisations
  • Amsterdam UMC Location University of Amsterdam 
    Netherlands (the)

    Data provider, Data access provider

  • AO City of Health and Science - Turin 
    Italy

    Data provider, Data access provider

  • AOU Meyer - Florence 
    Italy

    Data provider, Data access provider

  • ASL Tuscan Centre 
    Italy

    Data provider, Data access provider

  • Assistance Publique-Hôpitaux de Paris, Hôpital Henri-Mondor 
    France

    Data provider, Data access provider

  • Azienda Ospedaliero-Universitaria di Modena 
    Italy

    Data provider, Data access provider

  • Azienda USL di Bologna 
    Italy

    Data provider, Data access provider

  • Centre Hospitalier de Luxembourg 
    Luxembourg

    Data provider, Data access provider

  • Children's Clinical University Hospital, Riga 
    Latvia

    Data provider, Data access provider

  • Children's Health Ireland 
    Ireland

    Data provider, Data access provider

  • CHU de Bordeaux 
    France

    Data provider, Data access provider

  • CHU de Nice 
    France

    Data provider, Data access provider

  • CHU de Rouen 
    France

    Data provider, Data access provider

  • CHU de Toulouse 
    France

    Data provider, Data access provider

  • Civil Hospital - Brescia 
    Italy

    Data provider, Data access provider

  • Colentina Clinical Hospital 
    Romania

    Data provider, Data access provider

  • EB-Haus 
    Austria

    Data provider, Data access provider

  • Erasmus MC: University Medical Center Rotterdam 
    Netherlands (the)

    Data provider, Data access provider

  • Foundation IRCCS CA'Granda Ospedale Maggiore polyclinic - Milan 
    Italy

    Data provider, Data access provider

  • Foundation IRCCS-Casa Sollievo della Sofferenza 
    Italy

    Data provider, Data access provider

  • Foundation polyclinic University A. Gemelli - Rome 
    Italy

    Data provider, Data access provider

  • Helsinki University Hospital (HUS) 
    Finland

    Data provider, Data access provider

  • Hôpital Universitaire de Bruxelles(HUDERF-Erasme) 
    Belgium

    Data provider, Data access provider

  • Hospital Na Bulovce 
    Czechia

    Data provider, Data access provider

  • Hospital of Lithuanian University of Health Sciences Kauno Klinikos 
    Lithuania

    Data provider, Data access provider

  • IRCCS IDI foundation Luigi Maria Monti - Rome 
    Italy

    Data provider, Data access provider

  • Klinikum der Universität München 
    Germany

    Data provider, Data access provider

  • Maastricht University Medical Center+ 
    Netherlands (the)

    Data provider, Data access provider

  • Mater Dei Hospital 
    Malta

    Data provider, Data access provider

  • Medical University Innsbruck 
    Austria

    Data provider, Data access provider

  • Odense University Hospital 
    Denmark

    Data provider, Data access provider

  • Pediatric hospital Bambino Gesù, Rome 
    Italy

    Data provider, Data access provider

  • Saint Anna University Hospital in Brno 
    Czechia

    Data provider, Data access provider

  • Sant Joan de Déu Hospital 
    Spain

    Data provider, Data access provider

  • Semmelweis University 
    Hungary

    Data provider, Data access provider

  • Städtisches Klinikum Dessau 
    Germany

    Data provider, Data access provider

  • Szent-Györgyi Albert Medical Center, University of Szeged 
    Hungary

    Data provider, Data access provider

  • Universitätsklinikum Erlangen 
    Germany

    Data provider, Data access provider

  • Universitätsklinikum Freiburg 
    Germany

    Data provider, Data access provider

  • Universitätsklinikum Freiburg – Genetics 
    Germany

    Data provider, Data access provider

  • Universitätsklinikum Münster 
    Germany

    Data provider, Data access provider

  • Universitätsklinikum Regensburg 
    Germany

    Data provider, Data access provider

  • Universitätsklinikum Würzburg 
    Germany

    Data provider, Data access provider

  • Universitätsmedizin Rostock 
    Germany

    Data provider, Data access provider

  • University Hospital Brno 
    Czechia

    Data provider, Data access provider

  • University Hospital Center Zagreb 
    Croatia

    Data provider, Data access provider

  • University Hospital Ghent 
    Belgium

    Data provider, Data access provider

  • University Hospital Královské Vinohrady 
    Czechia

    Data provider, Data access provider

  • University Hospital Leuven 
    Belgium

    Data provider, Data access provider

  • University Hospital of Padova 
    Italy

    Data provider, Data access provider

  • University Medical Center Utrecht 
    Netherlands (the)

    Data provider, Data access provider

  • University Medical Centre Groningen 
    Netherlands (the)

    Data provider, Data access provider

  • University Medical Centre Ljubljana 
    Slovenia

    Data provider, Data access provider

  • University of Debrecen 
    Hungary

    Data provider, Data access provider

  • Uppsala University Hospital 
    Sweden

    Data provider, Data access provider

  • Zealand University Hospital 
    Denmark

    Data provider, Data access provider

Dataset variables

Datasets
Datasets and their description
No results for current selection
Dataset variables
Dataset variables and their description
No results for current selection

Networks

Part of networks...

Access conditions

Data access conditions
disease specific research
Data use conditions
  • project specific restriction
  • institution specific restriction
Data access fee
false
Release type
Continuous
Prelinked
true

Created with MOLGENIS